About us

In 2022, families of children with Dravet syndrome joined forces to form the  Syndrome Patients and Parents Association of Slovenia. We share useful information and experiences and support each other in coping with the disease.

Join us!

If your child has been diagnosed with Dravet syndrome, GEFS+ or a mutation in the SCN1A  gene (or suspicion of any of these), you are welcome to join us in the Association and in the Facebook group “Parents of children with Dravet syndrome”.

For more information, please contact us at info@dravet.si.